survivor

Everyday Easter

A grave can be beautiful. When Brooklyn was little she loved to go with my Mom to the cemetery to decorate the graves. It was a peaceful place, with beautiful flowers and meaningful stones. People visit to reflect on the life once lived. It’s a physical resting place in tribute of the one who once walked the earth. But I don’t like cemeteries. I can count the number of times I have visited my brother’s and my dad’s grave sites. My very first memory of a cemetery came the day I was discharged from the hospital on July 11th 1988. You may have pictured a grand departure from the burn center, but it wasn’t. It was somber. My dad was there to take me home. (side note: my mom was home preparing the welcome home celebration).

On our way home, Dad turned into the cemetery. We pulled up beside the steps opening to the sidewalk which led to Jon’s grave. I don’t remember how my dad physically got me up to the grave. He probably carried me from the car. I do however, remember him kneeling down beside me and touching Jon’s marker. I took in the dates- January 18, 1979 to April 27, 1988. I remember Dad crying. I remember hurting inside more than the hurt I had sustained on the outside. I remember feeling empty, alone, and sadder than I believe many adults have ever encountered. I was seven.

Death didn’t claim me on April 27, 1988, but death, nevertheless, overwhelmed my life. Death has a sting. It’s realized in the days, unguaranteed and the questions, unanswered.

When we feel the grief of the grave, it is then, that we can understand the significance of an empty one.

When I celebrate the empty tomb on Easter morning, I’m celebrating from understanding the grief of a filled one.

For me, knowing Jesus overcame the grave means He overcame that dark day my brother was put into one.

In life, there is no greater defeat than death. Death is final. My mom has frequently said, “as long as we’re breathing, there is hope,” meaning, things can always change. It’s encouraging to think on such a statement when things are awry.

When the job has been lost; when the diagnosis has been given; when the spouse has forsaken or even abandoned the covenant; when the child is rebelling; when the flood waters rise and the storm keeps raging, we can remember there is still hope for better, because there is still life.

But actually, there’s more. There is hope beyond life.

We all aim to make choices we feel will result in a happy life. Even the most self-destructive of choices are made not necessarily to create misery but to escape it; all for the desire to just be happy.

So what helps us to be at peace with the life we have on this earth, even when this life has seemed pretty crummy?

It’s knowing that this isn’t all there is.

No matter what trials we face in this life, this life is nothing compared to the next.  (James 4:14)

It’s a truth applicable for every day we live, not just on Easter Sunday. It may be Wednesday, but He is still alive! The celebration isn’t confined to one day a year—it’s continually realized in the face of life’s darkest days and hardest places.

Rejecting the gift Jesus provided to us on the cross, and the victory He established on Resurrection Morning, is allowing death to accomplish the intended purpose. One choice, one choice, to accept and pronounce Jesus as Lord and Savior, conquers death and the grave forever.

This knowledge allows me to walk as an overcomer. This knowledge gives me the stride of a victor.

Scarred bodies, loved ones dead- not the end, because He rose again!

Philippians 1:20-21 NIV~ I eagerly expect and hope that I will in no way be ashamed, but will have sufficient courage so that now as always Christ will be exalted in my body, whether by life or by death. For to me, to live is Christ and to die is gain.

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Comfort in Support

Sometimes we get things we don’t even know we need. What a perfect topic to cover at Christmas. There are so many different gift-giving approaches. • There’s the giver who buys something for someone, because they mentioned how they needed it or wanted it. • There’s the giver who buys something because it’s an item the giver themselves loves so much and they just imagine the receiver loving it equally the same. • There’s the giver who wants to completely surprise the receiver with something they know the person needs, but maybe never asked for it or mentioned it.

I’ve been in all the above situations.

When it comes to Christmas or Birthdays, I love wish lists. Some people find it offensive, but I find it to be incredibly efficient! It’s seamless picking out an item you know your loved one really wants. And then to see them open it??? Well, that right there is absolutely fabulous! There’s such excitement and joy.

Then, there have been items I so much enjoy that I want to get them for people I love. Like PETALS Strawberry Pepper Jam (petals74429@yahoo.com), or a Bath and Body Works Eucalyptus Spearmint Candle, or a gift card for a pedicure. You know…some of those little indulgences we don’t always spend the money for ourselves?

I’ve been more on the receiving end of the last item in question. I think back to our wedding and to when we were beginning to have our babies. Yes, we registered; however, there were so many items we never knew we needed. But our loved ones sure did. And they gave them. Included were both treasured pieces and practical items; things I couldn’t have imagined going without.

While I’ve given gifts that I didn’t personally love, but gave because the receiver did; and while I’ve also given gifts from a wish list, there’s one in particular I specifically remember giving several years ago; it was one that was never requested, but I bought it anyway. My Dad-in-law is a homebuilder/remodeler, so I gave him a painting of Jesus as a boy, and his father Joseph the carpenter. Although he had never requested the piece, he was delighted to receive it. I feel I was the one to end up with the gift; for the memory, and for how my heart is touched every time I’m in his office and see it hanging on the wall. I bought it for him, not because he’s my husband’s father, but because of my own love for him and my own knowledge of those things dear to his heart.

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Well, here it is, the time of year we put so much focus on gifts and I’ve received what Jesus knows is the greatest gift in my life, those most dear to my heart; people.

Everyone has struggles. There’s power in identifying them; then we don’t feel captive to them. And one thing I know about myself is I am a people person. Being around others inspires me, refreshes me and rejuvenates me. As you can imagine, having two surgeries within thirty days of each other really took me out of the loop. Like all the loops, my kids’ activities loop, my work loop, my church loop, my friends loop. It was kind of nice the first go around. I rested, I read, I caught up on all my favorite shows, but as I mentioned in “Why, Oh Why,” I hadn’t planned for this last procedure, so I wasn’t eager to sit around several weeks on top of already sitting around. Sitting. And laying. And sitting. And laying. Blah.

I’m very sensitive to the seeds of depression, because I’ve been there. And I know isolation is the growth media for depression. So having already a month of retreat, I felt the dread in my heart of having more. Everything in moderation. Right? We all need time of solitude, but too much of anything is not a good thing. Therefore, I shamelessly and somewhat pitifully invited, welcomed, asked, or maybe even begged for visitors and company; choose to insert whichever word to describe it, different moments appropriately apply. However, I believe it takes strength to identify our weaknesses, and it makes us even stronger to protect ourselves against them.

There can be such beauty in humility. Such value in vulnerability. Such fulfillment in openness. Although, I could have kept this next procedure quietly to myself, as I do some, I shared it and in return received the gift of what is written:

Philemon 1:7 Your love has given me much joy and comfort, my brother, for your kindness has often refreshed the hearts of God’s people.

The Lord uses people to GIVE-- whether it's wrapped or not, we get gifts so often. Those gifts of joy and comfort are just what I needed. It’s lonely sometimes. It can be scary. It feels painful. And I’m speaking to you, dear friend. I could write this for myself in my own little journal, without regard for sentence variety or structure, but I write this for you. Because you sometimes feel lonely. You sometimes feel scared and are in pain; all the many different types of pain. But I encourage you to find comfort, even if you have to ask for it.

This last surgery, my Aunt Donna walked into my hospital room with a symbol of comfort. It was Mouse! No, I’m not referring to the classy mouse who can so perfectly don polka dots and big yellow shoes, because you know how much The Meadows love that mouse too. But no, this was Mouse, the Puffalump Aunt Donna got for me when I was originally injured back in 1988. Mouse went with me to most of my surgeries. She’d sit at the foot of my bed when we’d roll back and she’d have a hat, a mask, and yes, sometimes even surgical booties. She was such a source of comfort to me. And having Mouse sitting in my hospital room this time, kept me thinking, “Wow! How far we’ve come. How much has changed.” “Just a stuffed animal,” one may be inclined to think, but I see a focal point, a focal point of comfort.

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And then let’s talk about the people! Oh my! My precious husband, at my side; one tech sweetly described him as “hovering.” He’s so protective, and although he doesn’t don an outfit of armor, he is most definitely my knight. And the kids. Their world is so expanded by the experiences they’ve had with me as their mom. They were born into the story and although they’ve observed some unpleasant and even grotesque sites, I pray it’s been an advantage to develop them into the people God intends them to be. And my Mom and my Aunt, those women who have walked this very long road and still show no signs of weariness in their support and their pride for the survivor they desired me to become.

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Bits of comfort walked through my door the next day. When I was mentally preparing myself to spend the day alone, as I knew my husband would have to be in the office and my children at school. God sent His gifts, my nursing school friend, Misty and her little boy Jeremiah. More followed: my friend, mentor and previous professor at OU, Rhonda Lawes, spending the afternoon with me sharpening me, challenging me both spiritually and intellectually.

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Then my team! For a girl who has NO athletic ability, I love referring to my co-workers as my team, because we demonstrate qualities that make a team great, which in turn is not only vitally beneficial for our patients, but rewarding to us as friends. Carrie, Haley, Carly and Molly spruced up my day with gifts in hand and laughter of heart. Oh what comfort! What joy! As if the Lord hadn’t packed in enough comfort I so desired, my in-laws topped it off by bringing us dinner. My Dad-in-law observing how I was drifting off, mentioned how he felt it was time for them to go so I could rest. And I told him no, because although I could hardly stay awake, I just wanted to hear their voices. Comfort.

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The next day, my precious friends Beverly and Michele, women I admire and feel strengthened just with their presence and conversation. Comfort. That afternoon, even my cousin, brought me my very first eggnog malt from Braum’s. Acts of comfort.

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After coming home, I had a full week of meals provided from friends. Truly it was the hand of Jesus extended; meeting basic needs in the most personal way. And after a week of love poured out, my best friend, Amber of over twenty years came to take care of me. Even getting on to me, as any best friend would, for my determination to attend my co-worker’s wedding, an event I couldn’t miss for the deep admiration I have for her as a person, as a young woman, and as a nurse. Some moments just can’t be missed.

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Not a day has gone by without a call from someone. And even several visits. Personal, come to my house kind of visits. People, I don’t live by anything. Not one person who came to visit, popped by on their way to run errands or Christmas shop, they intentionally came to visit. Like my precious, precious, dearest friend, Heather who shared an entire day, seriously, an entire day with me, right before she was suppose to be leaving for a road trip to Massachusetts. Comfort.

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You may think I’ve named everyone. I haven’t. It’d be a book. And that’s just from this one procedure. This one procedure that I feel I’ve done a million times. In almost twenty-seven years, I imagined people eventually running dry on concern and compassion. I mean. It’s not like it’s life threatening at this point. It’s just another toggle mark on the count, another one under the belt. It’s an investment in furthering the immense quality of life I’ve been able to experience. But above all, what I've had the privilege of receiving is so much love; love which never fails, never gives up, never runs out on me.

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We all may think we know what we want. We all may have an idea of what gift would benefit or suit us best. My lesson? Maybe we do sometimes. I’m so glad I opened the door for people to share love. I needed it. I needed to feel comfort and friendship and joy and laughter. If I had made a list, it would have had, “visitors and conversation” on it. God knew exactly what I needed and He has provided.

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If you committed your time to read this post, please let the scripture take root in your heart. You may need to allow others to refresh you, and you may need to flat out ask for it. On the other side, you may be just what someone needs. Oh, it might seem like you’re not doing much by picking up the phone, but that conversation may be more timely than you could have thought or imagined.

Love. Joy. Comfort. Kindness. Refreshed. Those are gifts. On the list or not; those are gifts.

Philemon 1:7 Your love has given me much joy and comfort, my brother, for your kindness has often refreshed the hearts of God’s people.

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A Bit Different

Is being different good? Is being different fun?

Is being different easy?

These are questions I asked the group of 2nd graders whom I shared my story with yesterday.

To answer the question, we must consider what is meant by “different.” We go through phases when we strive to fit in, and then periods when we pursue establishing our authentic self. Once again, I might be putting a little tune in your head. The memory of watching Sesame Street when my oldest child was a toddler comes to mind. Ernie would sing, “one of these things is not like the other, one of these things just doesn’t belong.”

It seems somewhere along the way of identifying different “things” we get some type of mindset that it applies to people too, or to ourselves specifically. Scripture tells us we are uniquely made, Ephesians 2:10 (NIV), “For we are God’s handiwork, created in Christ Jesus to do good works, which God prepared in advance for us to do.” Meaning something made by hand is not an assembly line, cookie cutter product. No, we are all unique and special individuals. Which means we were meant to be different.

Different can seem appealing when we’re talking about creating a new style or breaking out with an original talent. Who doesn’t want to be set apart when it results in affirmation and admiration? However, different doesn’t seem so appealing when it involves disfigurement and defects.

This summer my family and I finally watched Bethany Hamilton’s story, Soul Surfer. I tried to be discrete in my sobbing watching the scenes as they rushed her to the emergency department, her Mom in the following car asking the Lord to please not let her die, medical professionals swarming around her as her parents were pushed to the side. Then she went home. Same home, not the same life. The challenges lay before her, like Bethany lying in her bed looking at her Barbie Doll questioning her own beauty and love in her future, and shopping at the grocery hearing a little girl ask, “Mama, what happened to her arm?” Such an innocent question, but so hurtful.

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But you know Bethany’s story, because hello, they made a movie about it! And if you haven’t seen the movie, I highly recommend it, although you’ll probably need a box of tissue, especially if you’ve experienced personal tragedy yourself. So we know that Bethany has the most inspiring ending. She figured out how to return to surfing as the incredible athlete she had within her.

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Now, let’s consider another athlete who amazed us last season on ABC's Dancing with the Stars. I have to say, I don’t avidly watch the show, but I did catch a couple of Amy Purdy’s dance routines. I was impressed by her dancing ability, and then to watch intently enough to see she had prosthetics was captivating! Talk about an overcomer!

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I touched on these brave women’s stories when sharing my own with the 2nd graders. And they absorbed the message sensitively and respectfully. But when I put up Elsa’s picture, they were engrossed! Why Elsa? Because Disney gave us a story of a girl who was different and felt defective because of it, and children know and understand her character.

Elsa had a gift, but it took a challenge to discover it. Her ability to thaw was suppressed by her fear to love. Once she learned it, what made her different was no longer a curse but completely magical. Kids get that.

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Bethany Hamilton was an amazing surfer, but now she's even more, she's inspiring. She faced the possibility that she may never be able to get up on a board again, but she still tried. Now she’s touched countless lives across the world with her courageous story.

Amy Purdy, on top of being a three-time world cup gold medalist, is a dancer, model, speaker, spokesperson for the National Meningitis Association, and a co-founder of a company who helps adaptive athletes get involved in action sports.

So the questions remain…

Is being different good? No, it’s not always good.

Is being different fun? No, it’s not always fun.

Is being different easy? No, it’s not EVER easy.

But I am encouraged by these stories because what could have caused the story to end actually was what spurred the next chapter.

Personally, I could have never imagined the Lord using my most heart wrenching experiences to touch others. The countless times I laid in bed asking, “Why didn’t I die too?” The many incidences I’ve wanted to crawl in a hole when people stare, or much more, when they point. The memories. The fear. The disappointment. The heartache. The loss. It’s been a journey. Honestly, there are times I still cry. One moment. One decision, at such a young age, changed absolutely everything.

In time, I began to see all the goodness which came from it. I just had to wait. Because only the Lord could have written a story like this.

No, it wasn’t good. No, it wasn’t fun. No, it wasn’t easy. But through the difficulty, I've had the chance to see God’s hand at work in my life. He didn’t intend this tragedy to happen, but He is the Author and Finisher of our faith (Hebrews 12:2 NKJV), which means He gets the final say.  He’s writing the scenes and I’m grateful to be in His storyline.

Yesterday, I looked at about seventy-five 2nd grade faces and shared my story. They learned about rules to keep them safe, they learned about burn injury, they learned about accepting others as unique and special individuals, they learned not to laugh at or make fun of other people, and I hope they learned sometimes in life, we must simply wait.  Because God can use what's different.  He loves what's not like the other.  Just wait… He'll show you.

Psalm 27:14 NIV

Wait for the Lord;
  be strong and take heart
 and wait for the Lord.

 

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A Meaningful March

A question that I was asked frequently toward the end of nursing school was, “Where are you going to work?” Some seemed surprised when I responded, “In the NICU at Saint Francis.” First of all, I was a burn survivor and second of all, I promoted Hillcrest Medical Center with my burn survivor story. But there are many stories that make up my life and who I am. One alone does not define me or guide me. Every experience contributes to the person I’ve become and the work I desire to do. As passionate as I am about burn care and the compassion, drive, sensitivity and motivation that burn care nurses provide, my eyes were opened to a whole new world in December of 2003. My first son, Jaron Michael was my biggest baby, born on December 23rd weighing 7 pounds. To our disbelief, Jaron was in respiratory distress and was taken to the NICU at St. John where he was intubated. Forty eight hours later, he was extubated and we were anticipating a quick transition to home. However, we were unaware of the common need for phototherapy and IV caffeine.  It was a heart wrenching process.

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Despite every intention to avoid another visit to the NICU, that is exactly where Brandon and I found ourselves when our fourth child, our third son Gavin Lee, was born on July 13th 2009. I had a sudden encounter with some very disturbing symptoms. I lost part of my vision, had a bout with expressive aphasia followed by dysphasia, then transitioned into receptive aphasia. My husband rushed me to St. John Medical Center; I was admitted, and started on the dreaded magnesium sulfate. Once the symptoms had subsided and I was faced with the fact that my baby was going to be delivered five weeks early, I lay in bed and wept, knowing the inevitable. I prayed for the Lord to help me accept that once again my baby would be whisked away by virtual strangers and I would not be able to be with him.

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These encounters developed my heart for this area of care. And today I get to do for other babies what I so desperately wanted to do for my own. I support these babies and their families through my work and my walk. For a girl who wasn’t supposed to live, and then wasn’t supposed to be able to walk, and who wasn’t supposed to be able to have children, I get to live and walk with my children for other babies and their families. And that is exactly what we did last week.

Every year we set a $500 March of Dimes fundraising goal; a hundred dollars for each baby. You see, we have five babies in our hearts. We had Brooklyn, and then miscarried our second baby, we had Jaron, our first NICU baby, then Caden, and then came Gavin, our second NICU baby. There is a personal drive to support moms in growing healthy babies, and in helping sick babies get well. It’s all pretty simple, but intricate too.

Our fundraising for 2013 came to $585! Thank you to all who gave support. Every donation, big and small, makes a difference. It made a difference for our family and it makes a difference to this nurse.

How precious is your unfailing love, O God! All humanity finds shelter in the shadow of your wings. Psalm 36:7 NLT

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Thank you to our sponsors! Allison Bacon, Mindy Beasley, Stephanie Bennett, Betty Bermudez, Misty Berryhill, Natalie and Donnie Clyma, Susan Cochrane, Court and Lisa Dooley, Margaret Edmonson, Rob and Amanda Emery, Gayle Foster, Sherry and Tim Kelley, Robin and Kirby Meadows, Renda and Nathan Rapp, Emily Forth, Lezlie Glass, Elizabeth Herber, Lori Kelly, Jammie Kern, Megan Lindsey, Kayla and Felipe Martinez, Julia Morrison, Kristy and Greg Morrison, Brandon and Athena Rainbolt, Trevor and Amber Randall, Ray and Emile Tucker, Channing Wedel , Teddy and Denise Wyatt.

March of Dimes Mission

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